Raising awareness of diagnosable conditions

Rachael and Jonny Casella lost their seven-month-old daughter Mackenzie last year after a diagnosis of spinal muscular atrophy type 1. Rachael and Jonny are raising awareness of the importance of testing for diagnosable conditions, and increased access to testing. Read more about their story here. Our hearts go out to Rachael and Jonny, and all of our followers who have gone through a similar experience.

Don’t forget that we also have a support forum here on the website that you can register for, if you feel it could be helpful. This is somewhere where you can connect with others who have been through, or who are going through, similar experiences.